Guide to Student Disability Protection and Plans

Parents of students with disabilities may have a lot of questions when sending their children to school. Will the school adequately support their child? What laws are put in place to ensure their safety and success?

To help answer some of these questions and more, our team created a guide that is directed primarily toward parents of students with disabilities, but we think it may also be valuable for those hoping to advocate for these students and familiarize themselves with their rights.

This comprehensive, expert-driven, and easy-to-digest guide lays out everything that students with disabilities and their parents need to know about their rights and the laws that protect them, such as the ADA, Section 504, and IDEA. Parents can also find expert advice on how to best prepare an education plan for their student. You can read the full guide here.

Looking for Family Advisory Council Members – Help us Change the Outcome Together

The Division of Developmental & Behavioral Pediatrics (DDBP) is looking for individuals to join the Family Advisory Council (FAC). The goal of the group is to discuss ways families and professionals can improve the patient experience within DDBP.

More information

Contact the DDBP Family Support Team for more information about the FAC, to get an application, and to return your application by March 30th.

Transition Booster Session 1 in SW Ohio: Planning for Transition IEP, March 13, 2018

We are excited to share with you that our first transition booster session of 2018 will take place on:

Tuesday, March 13, 2018 from 6:00pm to 8:00pm at the Medical Office Building (MOB, 3430 Burnet Ave) at Cincinnati Children’s Hospital Medical Center (CCHMC)

Our expert speakers, Patrick Wong and Sharon Rieke from State Support Team 13, Hamilton County Educational Service Center will, talk about how to best prepare for transition IEPs in schools. This session is geared toward parents/caregivers of youth and young adults with developmental disabilities, complex medical and/or behavioral needs and/or chronic health conditions.

Learn more here
Register here

Family Voices 2017 Activity Highlights

Family Voices is a family-led, nonprofit organization, working to keep families at the center of children’s health care. Since forming Family Voices in 1992, families of children and youth with special health care needs have built a highly respected diverse national grassroots network of family and youth leaders focused on improving healthcare services and policies. The network of Family Voices State Affiliate Organizations (SAOs) and Family-to-Family Health Information Centers (F2Fs) in every state and DC provide information, assistance, and support to other families of children and youth with a range of special health care needs and/or disabilities and work closely with professionals to improve care. Their work and accomplishments are varied and extensive and can be found here.

 

Educational Inclusion Survey through Walsh University

This survey asks questions related to special education from parents’ point of view. The purpose of this research project is to help to better serve families who have children with special needs in school. The end goal is to inform schools about the needs/wants of students and families in the areas of communication, access to information about special education, thoughts on inclusion, and implementation of parent support groups/educational seminars if wanted/needed.

Should you choose to participate, you may opt to be entered into a raffle for a $50 Amazon gift card (two gift cards will be sent out in May, when the study is complete). When you click the link below you will be taken to an introduction that explains the study in more depth and requests your consent to participate. Thank you for your help with this important project.

Take the survey here.

Ohio F2F Planning, We need your input

The Ohio Family to Family Heath Information Center (Ohio F2F: www.ohiof2f.org) needs your help!

If you are a professional who serves or if you are a family member of someone between 0-26 years of age who has a special healthcare need, a (complex) medical condition or (developmental) disability, then we would like to hear from you!  

As the Ohio F2F team is planning for the next four years of our work in Ohio to support families in navigating the healthcare and health insurance systems to achieve optimal care for children with healthcare needs, we would like to get your input on what you think is missing in supporting families of children and youth with special healthcare needs, complex medical conditions and developmental disabilities to receive optimal care and live healthy, safe, happy and productive lives in the community.

The survey should not take more than 10-15 minutes. You will answer all questions anonymously, which means that no one will know that you completed the survey and that no one will know what your specific answers were. All questions should be answered in relationship to the child/youth with special health care needs/ complex medical needs/developmental disabilities.

Take the survey here

The survey will close on Friday, December 29, 2017.

Thank you so much! We greatly appreciate your input!